Tweet Chats #LDCelebrateMe #WeLDNs

Final Tweet chat-learning disability nursing within tertiary care

On the 17th of July 2018 co-hosted along with the final in a series of 3  tweet chats. You can view the transcripts along with some post chat reflections at http://www.wecommunities.org/tweet-chats/chat-details/4202. Some analysis is presented below. You can leave further thoughts and comments at the we communities link and through this word press site.

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Final Tweet Chat: 8.30 BST, 17 July 2018

This is the final Tweet Chat, guest hosted by FoNS with .

FoNS aspiration for this project is to generate a new narrative for learning disability nursing and so, in order to reach out to nurses as widely as possible the three chats aim to capture experiences from across primary, secondary and tertiary health and social care.

Tweet Chat

At this final tweet chat on the 17th July 2018, at 2030 hours BST, the focus will be on learning disability nursing within the tertiary care sector. In accordance with the NICE glossary of definitions this includes care for people needing complex and specialist treatments. This may include specialist forensic provision, secure/inpatient services, end of life care and management of long term conditions. People may be referred for tertiary care from either primary or secondary care.

@FoNSCharity and @WeLD Nurses invites you to share your experiences of positive practice and consider the following questions for discussion:

1-Where and how are learning disability nurses having a positive impact on the lives of people with a learning disability and their families?

2-Why is learning disability nursing an essential role to sustain in tertiary care above and beyond other people and professionals who deliver services?

3-To what extent is the role of learning disability nursing understood in tertiary care and how can this be strengthened?

4-What support do learning disability nurses working at the frontline of services in tertiary care need to strengthen their role?

5-Is the current educational provision for learning disability nursing fit for purpose, what needs to change to enhance this and how would you articulate the importance of sustaining programmes to universities etc?

6-Finally, what would your ‘elevator pitch’ to government and policy makers be about the importance of learning disability nursing?

Your involvement is vital to creating this new narrative for learning disability nursing and influencing policy makers regarding the future!

To join the chat on the night, follow #WeLDNs, we look forward to your input.

If you are new to twitter, help and support can be found at twitterversity:  http://wecommunities.org/resources/twitterversity

 

 

Tweet chat two-learning disability nursing within secondary care

 

On the 19th June 2018 co-hosted along with the second in a series of 3  tweet chats. You can view the transcripts along with some post chat reflections at http://www.wecommunities.org/tweet-chats/chat-details/4200 . Some analysis is presented below. You can leave further thoughts and comments at the we communities link and through this word press site.

A twitter briefing for the the final scheduled chat on the 17th of July 2018 is to follow. This final chat will focus on tertiary care.

If you are new to twitter, help and support can be found at twitterversity:  http://wecommunities.org/resources/twitterversity

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Poll Question results

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Second Tweet Chat: 8.30 BST, 19 June 2018

This is the second in a series of three Tweet Chats, guest hosted by FoNS with .

FoNS aspiration for this project is to generate a new narrative for learning disability nursing and so, in order to reach out to nurses as widely as possible the three chats aim to capture experiences from across primary, secondary and tertiary health and social care.

Tweet Chat

At this second Tweet Chat on the 19th June 2018, at 2030 hours BST, the focus will be on learning disability nursing within the secondary care sector. In accordance with the NICE glossary of definitions this includes any ‘healthcare provided in hospitals’. This includes accident and emergency departments, outpatient departments, antenatal services, genitourinary medicine and sexual health clinics’.

@FoNSCharity and @WeLD Nurses invites you to share your experiences of positive practice and consider the following questions for discussion:

1-Where and how are learning disability nurses having a positive impact on the lives of people with a learning disability and their families?

2-Why is learning disability nursing an essential role to sustain in secondary care above and beyond other people and professionals who deliver services?

3-To what extent is the role of learning disability nursing understood in secondary care and how can this be strengthened?

4-What support do learning disability nurses working at the frontline of services in secondary care need to strengthen their role?

5-Is the current educational provision for learning disability nursing fit for purpose, what needs to change to enhance this and how would you articulate the importance of sustaining programmes to universities etc?

6-Finally, what would your ‘elevated pitch’ to government and policy makers be about the importance of learning disability nursing?

Your involvement is vital to creating this new narrative for learning disability nursing and influencing policy makers regarding the future!

To join the chat on the night, follow #WeLDNs, we look forward to your input.

If you are new to twitter, help and support can be found at twitterversity:  http://wecommunities.org/resources/twitterversity

 

 

Tweet chat one-learning disability nursing within primary care

 

FoNS Reflection on learning disability nursing within primary care

#LDCelebrateMe #WeLDNs

On the 22nd May 2018, the Foundation of Nursing Studies guest-hosted with #WeLDNs the first in a series of three tweet chats as part of the #LDCelebrateMe project. The focus of this first chat was to capture a variety of perspectives and experiences of those working in and/or accessing primary care services.

Overall, there was a feeling of energy and enthusiasm from participants, all wanting to contribute to a new narrative about learning disability nursing. The chat saw 56 contributors, of whom the majority were LD nurses (72%) working within a community setting (60%) in the NHS. The hour just seemed to fly!

During the discussion, a series of prompting questions were offered to encourage participants to focus discussions on what is needed to inform the future preparation, work and ongoing development of learning disability nurses within this clinical context.

Participants considered where and how learning disability nurses are making a positive impact. There was no doubt from the responses that they do and do so within a variety of roles. There was a sense that learning disability nursing takes on all aspects of health and social care. An interesting suggestion was noted that sometimes learning disability nurses ‘wear clinical/social hats together’. Tweets shared indicated that the role is extensive, versatile, adaptable, dynamic, holistic and one which spans across the whole of a person’s lifespan.

Is there a need for learning disability nursing to clarify their role in terms of health needs?

A criticism of learning disability nursing could be that the role is too extensive and overlaps other professions e.g. learning disability nursing/social work.

There were suggestions that specific aspects of the role, such as the acute liaison, health promotion and facilitation, are significant in supporting people with a learning disability. As such, improvements in patient health outcomes can be achieved by ensuring the implementation of reasonable adjustments.

The discussion offered many positive examples from practice demonstrating the impact of the role at the interface of care delivery. Such examples included: hospital passports, best interest care plans, annual health checks, outcome measures such as the Health Equalities framework, physical health screening programmes and psycho-education provision for families and individuals.

There was support for the value and impact of liaison and diversion roles which aim to improve the health and criminal justice outcomes for adults and children who come into contact with the criminal justice system. Perhaps further exploration and understanding of such roles would be helpful.

There was a feeling that there is an abundance of anecdotal evidence to support the value of the role, but it raises the question of whether we need to be better at documenting, promoting and publicising what we do. Another perspective offered implied that evidence might be generated more within specific roles such as acute liaison. The role of acute liaison practitioner and the health screening services offered by the learning disability nurse should identify unmet health needs within the learning disability population. An overall evaluation of outcomes from these services would give clearer evidence of need.

It would be interesting to explore how representative this is within the wider remit of primary care?

Is the role of the acute liaison nurse/health screening being seen as more valued than other roles of an learning disability nurse working within a care home setting for example?

In relation to views on sustaining the role there was acknowledgment of the vital contribution which learning disability nurses offer. Popular contributions included:

‘People with learning disabilities may need additional support to access primary healthcare and the RNLD can assist through working with them, their families and primary care teams to make sure that there is equitable access’

‘because we have to do something about the increased morbidity and premature death and primary care need to help change things for the better. Learning disability nurses are often the best reasonable adjustment there is’

‘Unfortunately evidence like the leder-team [Learning Disabilities Mortality Review Programme] report suggests that primary care struggles to meet the needs of people with a learning disability. It would be interesting to see how many deaths have been prevented/avoided by ALNs and RNLDs in primary care’

Others highlighted that sustaining the role supports the implementation of reasonable adjustments, assists in meaningful choice making, co-ordination and collaboration of care. Sustaining the role enables positive opportunities to be created for individuals to have equitable access to healthcare and in doing so reduces the gap of health inequalities. There was a sense that education and support offered is key for individuals with a learning disability for them to be able to seek out their own support in relation to their health and wellbeing. Sustaining the role within primary care would alleviate the risk of diagnostic overshadowing and the over prescribing of medication.

There was a notion that part of the skill set of the learning disability nurse is to help bridge the relationship with other primary healthcare professionals and services. It is important to consider how and what this would look like in practice.

The discussions began to focus on how well the role is understood and this sparked some feeling that there is a general lack of understanding and awareness of the role within primary care. This raises an interesting question that if the profession itself and public do not understand the role clearly, how do learning disability nurses know what they need to strengthen the role? Ideas tweeted proposed promoting the role from school age up to university level and within other professional groups.

To strengthen the role of the learning disability nurse in frontline services, participants proposed the following ideas: further education, use of the green light toolkit to support and improve mental health services for people with autism and learning disabilities, clear articulation of the role and expectations, sharing of training with other professions and within other professional fields such as with GPs. Commissioning services need to understand the role and skills of the learning disability nurse and how they can be involved in development and improvement of services. There is a need for strong leadership at national government level and at a local level to promote and support the role of learning disability nurses.

When discussions focused on the state of current educational provision for learning disability nursing, participants said this varied from ‘great’ to ‘it’s hard to respond’ throughout the country. A question was asked: Will changes occur in light of the new NMC standards for education?

Overall, there is a lack of awareness of the LD nurse role both within education and within other professional groups. One tweet stated:

‘Learning disability nursing is about investing in society. Having a learning disability nursing course sends a powerful message out to all university stakeholders about the value of the

institution and is a great advert for all prospective students; come and study at a university that cares about all people’

Does England need to look at work already undertaken within Scotland, Wales and the Republic of Ireland to see what lessons can be learnt and how the role can be better promoted within England? Is there a need for a new marketing campaign to raise awareness of the role?

The final part of the evening focused on participants’ ‘elevator pitches’ to government and policy makers about the importance of learning disability nursing. These tweets really reflect how important the learning disability nurse role is. Some examples of these are:

‘In history our society will be judged by how well we care for our most vulnerable citizens. In a modern civilized society, we need LD nurses to be the reasonable adjustment that mitigates against poor health outcomes and premature deaths’

‘People with LD are some of the most vulnerable in society, they deserve better, equitable access to health with specialist nurses is a must!’

‘RNLDs across the lifespan. RNLDs needed in children’s services, lots of work to be done around ACEs [Adverse Childhood Experiences] and proactive interventions’

‘LD nurses bring a unique and rare skill set that supports, enables and empowers people with LD to have better health. The impact of poor health in people who have LD is much wider, affecting families and communities, health, social care and education providers’

‘Identify the significant inequalities that our clients face daily and support us in changing this. Our clients are living longer yet you only have to look at CIPOLD [Confidential inquiry into the premature deaths of people with a learning disability] to see how common deaths. We do an amazing job, imagine how amazing we’d be with your support!’

‘Evidence such as mortality review and recent high-profile deaths and Winterbourne view demonstrates that change is not happening quickly enough. RNLDs and disability education need to be embedded within health care education to at least attempt to minimise inequalities’

‘People with LD are part of the electorate too. LD Nursing roles are truly holistic and promoting political engagement amongst LD population is extremely important. We have the means and abilities to promote and support social inclusion’

‘This is a growing population who are living longer and enjoying life, it’s so important that access to health does not continue to be the reason this enjoyed life ends at a much earlier rate than the gen pop – learning disability nurses play a role in being this change’

 

On the 22nd May 2018 co-hosted along with the first in a series of 3  tweet chats. You can view the transcripts along with post chat reflections at http://www.wecommunities.org/tweet-chats/chat-details/4197. Some analysis is presented below. You can leave further thoughts and comments through the we communities link and through this word press site.

A twitter briefing for the second scheduled chat on the 19th June 2018 is to follow.  This second chat will focus around the secondary care sector.

If you are new to twitter, help and support can be found at twitterversity:  http://wecommunities.org/resources/twitterversity

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Discussion Statisticstweet 1of 4

 Poll Question results

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First Tweet Chat: 8.30 BST, 22 May 2018

This is the first in a series of three Tweet Chats (subsequent chats are 19 June 2018 and 17 July 2018) hosted by FoNS.

FoNS aspiration for this project is to generate a new narrative for learning disability nursing and so, in order to reach out to nurses as widely as possible the three chats aim to capture experiences from across primary, secondary and tertiary health and social care. Visit https://ldnurses.wordpress.com/about/ for more information about he background to ‘Celebrate Me’.

Tweet Chat

The first #weldns Tweet Chat will focus on learning disability nursing within community living and primary care. In accordance with the NICE glossary of definitions this includes any ‘healthcare delivered outside hospitals’. This could include GP, dentistry, opticians, ill health prevention, health promotion, public health, PBS, community clinics, health centres, walk-in centres, residential and social care provision.

 @FoNSCharity and @WeLDNurses invites you to share your experiences of positive practice, either during the tweet chat or in advance, and consider the following questions for discussion on the night:

  •  Where and how are learning disability nurses having a positive impact on the lives of people with a learning disability and their families?
  • Why is learning disability nursing an essential role to sustain in primary care above and beyond other people and professionals who deliver services?
  • To what extent is the role of learning disability nursing understood in primary care and how can this be strengthened?
  • What support do learning disability nurses working at the frontline of services in primary care need to strengthen their role?
  • Is the current educational provision for learning disability nursing fit for purpose and what needs to change to enhance this?
  • Programmes for educating and training future learning disability nurses are under threat – how would you articulate the importance of sustaining programmes to universities etc?
  • Finally, what would your ‘elevated pitch’ to government and policy makers be about the importance of learning disability nursing?

Your involvement is vital to creating this new narrative for learning disability nursing and influencing policy makers regarding the future!

To join the chat on the night, follow #WeLDNs, we look forward to your input.

If you are new to twitter, help and support can be found at twitterversity:  http://wecommunities.org/resources/twitterversity

 

 

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This project will deliver three tweet chats to explore the work of learning disability nurses in primary, secondary and tertiary care sectors. Each chat will be based around a briefing a paper posted in advance of the chat and will include the following broad themes – practice and impact, educational and training and recruitment and retention.

These social media engagement opportunities will be facilitated in collaboration with @WeLDNurses using the well-respected #WeCommunities social media platform (wecommunities.org). The transcripts from each chat will be subject to content analysis and the themes shared to inform a further layer of review and scrutiny. The raw transcripts and subsequent theming will be placed on this blog site for critique and feedback.  All the information will then help to inform the regional stakeholder consultations which are scheduled to take place from September 2018 on wards.

Please join us @WeLDNurses Tweet chats at 20.30 hrs (BST) on:

  • 22nd May 2018
  • 19th June 2018
  • 17th July 2018

#LDCelebrateMe #WeLDNs

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