Regional Stakeholder Consultations


The project undertook six regional stakeholder events between October and November 2018.  Each event was hosted in collaboration with FoNS and healthcare organisations within England and one in Northern Ireland. This enabled expert learning disability nurses and others to review, scrutinise and add to the developing data/evidence. Each event invited up to thirty participants which targeted practicing learning disability nurses, student nurses, other medical and AHP colleagues, educators, researchers, people using services, families/carers and experts by experience.  All participants received a briefing paper in advance and a consent form including an easy read version.

Events in which participants were primarily family/carer, self-advocates and experts by experience explored the following questions:

  1. Why a learning disability nurse is important to you
  2. How a learning disability nurse has or could improve your life
  3. Any other support that you would like to have from a learning disability nurse

This was captured through some digital recordings, creative methods, graphic illustrations and postcards addressed to the Chief Nurse of England.

The student nurse and more professional lead events focused on the following:

  1. Why a learning disability nurse is important?
  2. What attracted you to learning disability nursing?
  3. World café approach to exploring the emerging themes from the data around learning disability education/courses/placements, Impact and skills and attributes of a learning disability nurse

Again, similar methods have been utilised to capture outputs at these events.

Dr Pen Mendonca, Independent Graphic Illustrator and artist was employed to capture the emerging themes/key issues at each event.  This enabled each graphic to be a unique representation of the Individual and collective experiences and views from participants who had attended. All graphic illustrations provided live data which was shared via social media, through this WordPress site and within the final report which is due to be published in April 2019.

Event 1: Families and young people

CAAP (Cornwall accessible activities programme), 19th October, 2018, Village hall in Mawgen Porth, Newquay.

In attendance: 9 family members, Helen Laverty MBE (Advisory Group Member) and 3 young people.

Facilitators and hosts: Giselle Cope, & Theresa Shaw, FoNS; Angie Emrys-Jones & Sandy Lawrence, Directors CAAP.


Event 2: Professionals/Learning Disability Nurses 

Northern Ireland’s Five Health and Social Care Trusts, 5th November 2018, Slieve Donard Hotel, Newcastle, County Down.

In attendance: 31 participants from the Belfast Trust, Southern Trust, Western Trust, South East trust and the Northern Trust (30 participants were learning disability nurses and one practice development educator non learning disability nurse).

Facilitators and hosts: Giselle Cope, FoNS & Theresa Shaw, FoNS.


Event 3: Learning Disability Student Nurses

University of Wolverhampton, 20th November 2018

In attendance: 43 LD student nurses (years 1 -3) representation predominantly from Wolverhampton University with some participants from Coventry and Keele University. Three representatives from Dudley’s Voices for Choice also joined and contributed to the event.

Facilitators and Hosts: Giselle Cope, Theresa Shaw , Debbie Warren, FoNS; Sean Ledington, Lecturer, Lynne Westwood, Senior Lecturer, University of Wolverhampton.



Event 4: Professionals/Learning Disability Nurses

Midland Partnership NHS Foundation Trust, 23rd November 2018, St Georges Hospital Stafford.

In attendance: 15 LD professionals and 1 RMN, representation from inpatient and community services. Chief and Deputy Chief Nurse attended along with the Head of Forensic Low Secure Provision (RMN).

Facilitators and Hosts: Giselle Cope, Theresa Shaw, FoNS; Simon Lloyd, Head of Forensic Nursing & Interim Operational Pathway Lead.



Event 5: Professionals, Forensic/Inpatient 

Nottinghamshire Healthcare, 28th November 2018, Rampton Secure Hospital, Nottingham Inpatient/Community Services.

In attendance: am event, 16 learning disability professionals one of whom was a learning disability Consultant Nurse. Pm Event 12 learning disability professionals from community and inpatient services.

Facilitators and Host: Giselle Cope, FoNS and Jonathon Slater, Consultant Nurse.




Event 6: Self-advocates, Families, Experts by Experience

Manchester People First, 29th November 2018

In attendance: 22 participants which included self-advocates from Manchester People First, Future Directions CIC, Brothers of Charity and several family members and carers.

Facilitators and Hosts: Giselle cope, FoNS and Scott Watkin BEM, Senior Learning Disability Advisor Seability and Expert by Experience.